Or something like that.
Mom recently had a young lady in college email her, asking if I could answer some questions for some childhood/teenage cancer research of hers. Which, as it were, not only helps the young lady, but also makes for a new blog post!
The questions are in italics, and the anwers are in norm print.
1. Who other than your parents did you turn to for support following your diagnosis?
I turned to my older brother Nathan, my grandparents, my best friend Victoria, and my dog Snowy. The doctors and nurses were also very supportive of me.
2. Did you or do you currently participate in any support groups? If so how often did they take place and what seemed to help, or not help?
I have not participated in a support group that meets regularly, but I have attended Victory Junction Gang Camp for about five years. It is a weeklong summer camp just for kids who struggle or have struggled with medical problems. While it does not focus on our illnesses, it does show kids like me that we’re not alone and that we can still have fun.
3. Research shows that during teenage years kids like to spend as much time with their friends as possible. Research also says that teenagers with cancer spend more time with adults than they do with kids their own age. Were you able to maintain a social life, with old friends, or was there a way for you to find support in new friends maybe going through a similar situation?
Although I love my friends dearly, I am an introvert. I value my alone time, so even if I could, I would not want to spend every free moment with my friends. I also love spending time with my family. Being a pastor’s daughter as well as being a cancer survivor, I have learned to enjoy the company of adults perhaps more than other teens do, but I don’t hang out with them like I do with friends my own age. Though I spent much of my time in the hospital during treatment, a few close friends of mine and family friends would visit. I also got to go home occasionally and go to church and see my friends there, so for me, being home schooled, that was my social life. Ever since I was sick, I’ve only met two other kids who I’ve really been able to connect with about medical struggles and we have not really kept in contact. So having non-cancer friends has helped me just as much, or even more, than having cancer friends.
4. What research do you feel should be done to help other families in this situation know what type of support, and discussion helps improve quality of life, and add some normalcy to a teenager’s life who is living with cancer?
The support of other teens going through some of the same things is always helpful, but the support of non-cancer friends is always beneficial, as well. They may not always know exactly how to sympathize, but if they are a true friend, they’ll want to stay with their friend who is going through an illness and be a part of their life. As far as discussion goes, it should not completely avoid the subject of the cancer or of treatment, but the cancer or treatment should not be the focus of discussion, either. Disease cannot be ignored in conversation, but it really helps the patient to be spoken to like a “normal” person. Bringing up old cherished memories, singing familiar songs, and sharing inside jokes do not make everything better, of course, but they do provide the patient with a sense that their world has not been completely shattered by cells multiplying too quickly in their body.
Being a teen who has survived a childhood cancer, it is an incredibly sobering idea that so many my age are fighting cancer and so many have fallen on the battlefield. But it has also given me a new appreciation of life and those around me. If I had not had cancer, sure, I would still have two adrenal glands again and have three fewer scars marking my body, but I would also be such a different young woman; so different, in fact, I am not sure I would recognize her if I met her.
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Word of the day: bona fides
~Sarah Smith